Me: "Good morning love."
Adina: "Hi Mommy. Mommy, did you know my eyes always move?"
Me: "Yes, love. How do you know?"
Adina: "Caleb told me."
And there you have it.
Adina was born with nystagmus, an involuntary eye movement disorder that results in reduced vision. Her eyes constantly rotate back & forth, like a pendulum. Since, thankfully, Adina doesn't notice the world as moving, I've wondered when and how she would discover the oscillations. I should have known it would be the same way she figures everything else out - from her older brother.
Her reaction? A'int nothing but a thing. Adina Becker-Schwartz - Blond hair, long legs, moving eyes. "Mommy, did you know my eyes always move?; Can you get me some cheerios and orange juice please?"
And my feelings? Relief. Gratitude. And loneliness. Because I am sitting at a table, in a house, on a street, in a city, very far away from the friends who would so easily get the significance of the moment. And smile with me.
Back-track to three and a half years ago, a day or so after Larry and I learned of Adina's diagnosis. A ten minute car ride. Though I have absolutely no idea of where we went that night, I will never forget getting into my friend "J"'s car, "E" already there, and blurting out my news. I was terrified. At that point, we still had an MRI to get through in order to rule out the worst. And, I knew that it would be a long while until we'd know if our daughter was blind.
My friends made it ... OK. J immediately got on the phone to "K" whose son had the same disorder. And K became my friend. And she, and an entire alphabet of wise, big hearted women in Columbus, Ohio made me feel supported and loved and that whatever it was that I was going to have to help my daughter deal with, I would get through it - and Adina would too.
When all the books and brochures and web sites called nystagmus"wobbly" eyes, my friends made me see my daughter's eyes as "dancing."
I miss my friends.
I will make great friends in Denver.
I miss my friends.
Happy New Year. To Columbus, Baltimore, D.C., New York, Charlottesville, Jerusalem, Silver Spring, Ranana,Virginia Beach, and Newport News.
p.s. Thank you "N."